Download Ebook , by Lisa Genova
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, by Lisa Genova
Download Ebook , by Lisa Genova
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Product details
File Size: 2300 KB
Print Length: 353 pages
Publisher: Gallery Books; Reprint edition (April 7, 2015)
Publication Date: April 7, 2015
Language: English
ASIN: B00LQMDZPI
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Amazon Best Sellers Rank:
#74,613 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
As hard as it is to believe, I was just diagnosed with Huntington's a few weeks ago. July 23rd, 2015. I went to the HDSA website to figure out the full ramifications of what that meant. They had an article about Lisa's novel. I immediately ordered it and it is an accurate description of my life. I'm 63 and had been showing some signs of chorea and some memory problems for about 4 years. 2 years ago I was diagnosed by my PCP and neurologist after getting an MRI in Florida as having "a chorea" but definitely not Parkinson's. They were both baffled and never mentioned HD. I moved to California last year and my new neurologist eventually said I might have Huntington's and I got a DNA blood test. (41 CAG repeats in HD language.) I knew nothing about "prodone" until I read Lisa's book. It explained a lot about my entire adult life and gave me an invaluable new perspective on my mother's "mental illness's." I'm actually relieved with this diagnosis because I finally have answers as to why I'm like I am. I have found a great local support group and am also getting on a list for any future clinical trials. I live by myself with my dog. I can still take care of myself and am able to drive. I figure I have at least 5 to 10 years minimum and totally optimistic that there will be drugs developed in my lifetime that will slow or halt the progression of this awful disease. And maybe even a cure. I am so grateful to Lisa Genova for writing this book and the serendipitous way it appeared the week I needed it most.
I liked the story behind the O'Brien family which is about how this family is affected by Huntington's Disease which is just a cruel and heartless disease. You just feel so sorry for them all and what their lives are becoming and will become because of this disease. They are a close knit, loving family which I really liked and the author wrote of them very lovingly. The author certainly did her research in explaining the symptoms of this disease. Although I did not like the ending and felt there was more to the story that could have been written I would still recommend this book. I love the writing style of this author Lisa Genova and have read some of her others books such as Still Alice, which I highly recommend. I do plan on reading more books from this author.
Compassion for humankind is what Genova seeks ,and this book offers the setting in which to practice it. The O'Briens, the entire family, are individually introduced to Huntington's Disease. First, one of Boston's Finest, develops its strange symptoms and discovers cholera and other behaviors are to worsen until his early death. That news is not the worst. He learns the disease is genetic and his grown kids have a 50/50 chance of developing the same gene. He feels responsible.Would you want to take a test to tell you your future? Each of the four offspring struggles and decides.One can feel nothing but compassion for this Irish Catholic family who have worked hard and have a dreadful future. This disease, like many others, is truly unfair. I particularly became attached to Joe during the story, and literally held my breath while watching the disease take over, but not destroy, his life.Genova again has written a thoroughly excellent book . It will stay with me. The disease, though, must expunged!
I worked with a Huntington's patient in a hospital setting while I was still a practicing registered nurse--it was a soul crushing experience.The entire time I was reading this novel, all I could think about was that poor woman, in the final stages of her disease, trying to stand so we could get her into her wheelchair. Chorea looks alien. Joints aren't supposed to move the way hers were moving. She was trying so hard to talk to her daughter, but her mouth was incapable of making any words...only grunts. That woman had a profound effect on my entire nursing career. I know she's likely no longer living, but I still find myself wondering if she is alive, how is she doing? Were her children HD gene positive? Did that awful gene die with her?This novel was like that nursing experience...I have no doubt it will have a profound effect on me for years to come.It wasn't Ms. Genova's finest work...that honor goes to Still Alice, but it was an excellent, character-driven novel. If you go into this book expecting an action-packed drama, you're going to be unhappy. This book deals more with the internal dialogue of each family member, particularly Joe and Katie, as they deal with Joe's diagnosis and what it means for each of them and their family.At it's heart, this book is about choices. I was truly a bit surprised by how little Huntington's disease, and it's affects on the body, was actually discussed. Having just finished Every Note Played, also by Lisa Genova, where the reader gets down and dirty with ALS, I was expecting, well, more.Not going to lie...although I understand why the author concluded the book like she did, I was disappointed. Nevertheless, if you have enjoyed other Genova novels, you'll enjoy Inside the O'Briens as well.3.5 stars
My husband passed away 2 1/2 years ago at the age of 49 from HD. Our daughters were elementary age when we were given the results over the phone (not the way it should be done). My husband's family had no idea HD was in their family genetics. I truly appreciate that an author researched and wrote what each family member experiences. Our daughters lost their father at the ages of 16 and 18. Both girls talk about getting tested. I pray much like Joe each day in hope that they both have negative results.
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